Posted by diajosette on Oct 14, 2008 in
Uncategorized If you are a newly diagnosed Arachnoid Cyst patient there is a new website you should check out. www.arachnoid-cyst.com Not only does it link to the Arachnoid Activist forum, but it has a list of medical journals and newspaper articles mentioning Arachnoid Cysts. It is a great site to do your own research, which I personally highly recommend because doctors never tell you anything. So, please check it out!
Tags: arachnoid cyst
Posted by diajosette on Oct 3, 2008 in
Uncategorized I am pleased to announce the new version of Arachnoid Cyst Activist is here. If you need information on Arachnoid Cysts and associated complications please visit www.arachnoid-cyst.com or www.arachnoidactivist.com . We know all about doctors thinking our symptoms are “psychological” or “stress related”. For some reason neuros refuse to blame any symptoms of ours on our actual brain cysts! It is almost unbelievable that neuros would ban together worldwide to ignore Arachnoid Cyst patients.
As some of you know I have had 11 brain surgeries and countless procedures because of the havoc my Arachnoid Cyst caused: hydrocephalus, spastic gait, speech disturbances, aphasia, dysphagia, dystonia, myoclonus, bacterial meningitis, etc, etc, etc. So after living through this and moving to another country only to be “second guessed” by doctors from coast to coast I became furious!
Visit Arachnoid Activist for a list of neurosurgeons who take us seriously, and also for information from patients currently suffering from this debilitating syndrome. Compare your experiences of medications and treatments available. It is all there…
www.arachnoid-cyst.com
www.arachnoidactivist.com
Tags: arachnoid cyst, bacterial, brain cysts, chiari malformation, cysts, disturbances, dysphagia, dystonia, gait, hydrocephalus, meningitis, MRI, myoclonus, neurologists, neurosurgeons, spastic, speech
