Posted by diajosette on Jan 15, 2009 in
life,
pain My eye has felt really sore and bruised for a couple days and I noticed this morning that it looks like I burst a blood vessel. I never noticed this happening before in my eye, and was wondering if anyone with a VP shunt out there has experienced this. It may have nothing to do with my shunt, but lately I get a lot of nosebleeds on the same side as the bleeding eye and what do you know? It is also the same side where my shunt is.
I have been having problems with my shunt for over a month now and I am slightly worried this is all connected somehow.
Tags: vp shunt
Posted by diajosette on Oct 14, 2008 in
Uncategorized If you are a newly diagnosed Arachnoid Cyst patient there is a new website you should check out. www.arachnoid-cyst.com Not only does it link to the Arachnoid Activist forum, but it has a list of medical journals and newspaper articles mentioning Arachnoid Cysts. It is a great site to do your own research, which I personally highly recommend because doctors never tell you anything. So, please check it out!
Tags: arachnoid cyst
Posted by diajosette on Oct 3, 2008 in
Uncategorized I am pleased to announce the new version of Arachnoid Cyst Activist is here. If you need information on Arachnoid Cysts and associated complications please visit www.arachnoid-cyst.com or www.arachnoidactivist.com . We know all about doctors thinking our symptoms are “psychological” or “stress related”. For some reason neuros refuse to blame any symptoms of ours on our actual brain cysts! It is almost unbelievable that neuros would ban together worldwide to ignore Arachnoid Cyst patients.
As some of you know I have had 11 brain surgeries and countless procedures because of the havoc my Arachnoid Cyst caused: hydrocephalus, spastic gait, speech disturbances, aphasia, dysphagia, dystonia, myoclonus, bacterial meningitis, etc, etc, etc. So after living through this and moving to another country only to be “second guessed” by doctors from coast to coast I became furious!
Visit Arachnoid Activist for a list of neurosurgeons who take us seriously, and also for information from patients currently suffering from this debilitating syndrome. Compare your experiences of medications and treatments available. It is all there…
www.arachnoid-cyst.com
www.arachnoidactivist.com
Tags: arachnoid cyst, bacterial, brain cysts, chiari malformation, cysts, disturbances, dysphagia, dystonia, gait, hydrocephalus, meningitis, MRI, myoclonus, neurologists, neurosurgeons, spastic, speech
Posted by diajosette on Aug 9, 2008 in
life,
pain My brother Joseph bought me the entire set of Felicity DVDs for my birthday and I have been watching nothing but since. Of course it immediately reminds me of my own college days, the people I would hang with and the interesting experiences we all had.
Unfortunately a friend from back then, Lori, just died 3 days ago, and I found this out yesterday. I have so many memories of this person because we were always around each other my freshman and sophomore years of university–we shared some funny times and some depressing times. Our fathers both died 10 days apart which we both found to be somewhat freaky. When my dad died, Lori said, “I don’t know how you could be sitting in class right now because if that happened to me I wouldn’t be able to survive.” Then 10 days later she was going through the exact same thing. The summer after this we were both working for this music therapy conference–about 40 people came over to Immaculata from Japan and we had to look after them. It was one bizarre year for us.
Lori and I both worked at Camilla hall and she really helped me out when I got yelled at for not wearing the appropriate white trousers. She went and bought me a pair in which an elderly nun immediately vomited on. We both laughed.
I remember Lori making sure I was OK after I found out my cousin was killed in a car crash that following semester. She was a good friend. I am saddened that so many I have known have left this world too soon. Lori was an extremely talented poet and pianist. One of my favorite memories of her was when we were eating our usual geriatric meal in the cafeteria, I was talking about hair frizz and different methods to avoid this, and out of the blue she shouted, “Mandarin friend?!??!” You had to be there.
I feel so sad that she died all alone…no one should die all alone…no one…
Tags: college, felicity, lori riggins, univeristy
Posted by diajosette on Aug 4, 2008 in
Sleepless Night,
life,
pain If you are experiencing lightheadedness, dizziness, vertigo, night sweats, fever, feeling out of it, extreme fatigue and stomach pain after a cortisone injection, you are not alone. I had a cortisone injection 4 days ago into my knee, and ever since I have basically felt like my anemia came back, but guess what? It isn’t the anemia, it is a reaction the cortisone injection caused.
Immediately after my injection I started to feel lightheaded and out of it. The next day I was so tired I couldn’t even move, and now four days later it isn’t letting up. I called the duty doctor who says it is the cortisone injection and nothing to do with my blood. He says it will fade off in a little while. It can take over a week for this side effect to go away, which leads me to this question: Why did the rheumatologist tell me there were no side effects? I asked about 3 times before the injection and she said no! That is just bull shit. What did she desperately want me to have it? Besides it being extremely painful, now it has knocked me down for almost 5 days!
I have created a thread about this on my forum: http://diadesigns.com/cortisone
Tags: cortisone injection, knee pain, side effects of cortisone
Posted by diajosette on Jul 20, 2008 in
doggies,
life I have been racking my brain on how to get my two small dogs over to America with me when I move back. Both have separation anxiety to the point where they will pee all over me when I return home. Because of this I now take my dogs wherever I go. I attach Figaro to my buzz chair and drive down town while he walks alongside. So, imagining the stress they would both endure as cargo on a plane makes me uneasy about putting them through that situation. Even though they are both small dogs, no airline will allow them on board on an international flight. I can understand this because of the noise and well…smell if they needed a poo, but it makes traveling frustrating.
Figgy Wiggy
I was recently told about the Queen Mary 2. It is 6 day cruise from Southampton to New York which not only allows pets on the deck, but has a luxurious kennel experience for dogs, so much so that they get pampered by their own “Kennel Master” and get given “gift bags” which include a coat. :)
One would think that a 6 night cruise across the Atlantic would cost a lot more than an 8 hour flight, well not so. The total price for two people is $1,900 and that includes all meals, free drinks 24/7, a 1 bedroom suite, all entertainment and an overall brilliant experience.
Me and my Figs at a dog show
In an age where flying is becoming more and more expensive, the cheaper option to move from London to New York is to sail. Did I mention you can bring as much luggage on board as you need? Well that in itself is fantastic, since nowadays you are only allowed 1 suitcase on a business class flight without paying extra fees.
Pinocchio and KFC bucket
If you are moving from England to America, need to bring 2 or more pets, have an enormous amount of luggage, want your experience to be as stress free as possible, missed your last holiday because of moving plans and like cheesy cruise ship entertainment, the Queen Mary is definitely the easiest option for you!
Tags: abroad, america, cabin, cargo, chihuahua, defra, dog, doggie, england, jackhuahua, moving pets abroad, pets, queen mary 2, yorkie-russell
